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As he
passed by, he saw a man blind from his birth. And his disciples
asked him, "Rabbi, who sinned, this man or his parents, that he
was born blind?" Jesus answered, "It was not that this man
sinned, or his parents, but that the works of God might be made
manifest in him." John 9: 1-3.
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A Letter to the Editor sent to
American Annals
of the Deaf
Praise for "Our Decision on a
Cochlear Implant"
I recently read the
article "Our Decision on a Cochlear Implant" by Edward Peters
and believe it to be one of the most insightful articles I've
read to date regarding such an important decision in a child's
life and that of her family.
I learned so much from Mr. Peters'
perspective as a parent and appreciate his and his wife's
willingness to share such a personal decision with others.
I trust that Mr. and
Mrs. Peters will have their child's love and respect for years
to come and would not be surprised to learn that Margaret's
pride in her parents grows as she reads this article at various
times throughout her life.
Mrs. Mary Boas Hayes, IC/TC,
Sign Language Interpreter, Abraham Lincoln High School
Thanks, 'Mam.
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Personal
Special Needs
Kids
The following sites or organizations are helpful in learning how to address the situations of some Special Needs children. Each site contains
links to a wide range of information in their respective fields.
I.
General Educational
Kaleidoscapes
(home-schooling Special Needs kids,
no new posts after March 2002)
Home School Legal Defense Association
(includes
information on Special Needs legal services)
II.
Epilepsy
Epilepsy
in Young Children
Epilepsy Foundation of America
III.
Deafness
Deafness/Hard
of Hearing
Books on Deafness:
Paul Ogden, The Silent Garden: Raising Your Deaf Child
(1996)
This was the
first book put into our hands after learning about our toddler's
deafness. We will be forever grateful that we found this tool for
navigating the maddening world of options in lifestyles and education.
Ogden struck us as consistently fair and accurate about the issues and
alternatives that parents of deaf children face and perhaps that is why
his book seems to be so respected by those across the wide spectrum of
perspectives. Ogden immediately gave us as parents a common vocabulary
for discussing our child's situation instead of relegating mom to
talking about the things only she had learned with dad meanwhile talking
only about the things he had learned. In brief, I can't imagine the
parents of a deaf child not benefiting immediately and enormously from
this book.
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Susan Schwartz,
Choices in Deafness: Parents' Guide to Communications Options
(1996)
Second
only to Paul Ogden's Silent Garden (that treats of a broader range of
issues than does Choices) this is the most balanced and readable book
specifically dealing with deaf education and communications options that we
(hearing parents of profoundly deaf toddler) have yet found. There is a very
good mix of professional articles and actual parental stories, recently
supplemented by updates from the children themselves, now mostly grown. This is
the only book of its kind that we have seen that provides actual audiograms for
most students/subjects, something hearing parents MUST have in order to relate
the stories in Choices to THEIR kids' situation. (I only wish AIDED
audiograms had been consistently included as well, since those are nearly as
important as basic audiograms.) I don't suggest tinkering with success, but I do
think somewhat more information on the failure rates for given options should
have been given, since it is far too easy for us as parents to imagine OUR child
as being the successful student portrayed in each section, thus short-changing
the down-side risks of each option. Also, it might have been nice if a few more
stories of deaf people who didn't live in Maryland at some point in their life
could have been included. That's hardly a real criticism, though, and I conclude
by recommending this book highly.
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Thomas Spradley,
Deaf Like Me
(1985)
Over 90% of
deaf children in the US have hearing parents, and perhaps the first
thing those parents learn is that the single word "deaf" is
unable to convey the wide range of hearing losses lumped under the term
"deaf", and with that, the consequently wide range of options
that Deaf people have for approaching life. Since each person's story is
so unique, though, it is all the more wonderful that the Spradley family
was able to tell the highly individualistic story of their deaf daughter
Lynn (now a young adult) in such way that it holds the interest of, and
teaches valuable lessons to, the families of other deaf children,
regardless of their particular situation. Curious how one family can
learn things about itself while reading the story of another family, but
that's what happened with us. This more "humane" book is also
welcome break from the reams of more technical reading that most hearing
parents must plow through as part of helping their deaf children. I
recommend this book warmly.
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American
Annals of the Deaf
See: Edward Peters, "Our Decision on a Cochlear Implant",
American Annals of the Deaf 145(3), pp. 263-267 (October, 2000). See also
Letter, left.
IV.
Diabetes
Juvenile
Diabetes Research Foundation
(especially for Type One diabetes)
American Diabetes Association
(especially for
Type Two diabetes)
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